Family to Family

We value and learn from the information that families share with us and with each other. This section of the website is dedicated to our readers. This is where you can let others in the EB community know what worked for you and what didn't. Please share your successes so others can benefit from your knowledge and experience.

If you have a healthcare tip that you would like to share, e-mail the EB Advocate Team, and we will post it in this section.


Tips from EB Nurse readers   

Travel Tips for EB Families